PLEASE NOTE: THIS IS NOT THE NATIONAL MARROW DONOR PROGRAM (aka BE THE MATCH) WEBSITE
THIS IS A VOLUNTEER ADVOCACY WEBSITE

To join "Be The Match" by ordering a test kit online please CLICK HERE (For U.S. residents)
To locate a live drive using your Zip Code please CLICK HERE
(For U.S. residents)
To learn where to register in all other countries please CLICK HERE

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Before Launching Your Drive

Learn about
The Disease
Ethnic Focus
Joining the Registry
Donor Programs
Common Myths
Donation Process
Privacy Concerns


Call to Action Tutorials

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This section is under development. The following media tutorials will be online soon.
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Illustrations
  • Donation Methods
  • Transplant

Video
  • Donation FAQ's
  • Live Drive


Info in Foreign Languages


Read and share donor Info written in Japanese on the Helping Yoko Website
 

Join the Donor Program

If you are here not as a patient or adovacte but as someone who wants to join the marrow donor program to possibly be a match and save a life someday please visit:
Be The Match
where you can order a home test kit online or join in person by locating a live drive using their Zip Code locater.

Be The Match Blog


 

Key Things to Understand Before Launching Your Donor Drive

1. Learn About the Disease
Click Here for Details

2. Why Ethnicity Matters Click Here for Details

3. Joining the Registry Click Here for Details

4. Locate a Donor Program to Partner With Click Here for Details

5. Common Myths and FAQ's Click Here for Details

6. Learn About the Donation Methods Click Here for Details

7. Learn About Privacy Online Click Here for Details


Learning about the disease you are dealing with is crucial in launching an online or local donor drive

How can you inspire others to care about your concerns if you can't explain the cause to them? You want to be able to answer the following questions:

  • What is the name of the condition?
  • How do you pronounce it?
  • What causes it or is the cause unknown?
  • What supportive care is available while a marrow donor is sought? I.E. blood and platelet transfusions, medications, chemo, etc.
  • How urgent is the patient's need? How long can they wait for a transplant?
  • What is the most likely outcome without a transplant?
  • How will a transplant help?

How do you learn more about the disease? If you are the patient your doctors will give you some basic information on your condition that you can use to answer these questions.

If you are a family member, friend or volunteer you can go online and do some basic research using websites. Sites to look at would be those of recognized marrow donor programs, hospitals or treatment centers such as:

This is just a short sample of the sites that will hold the information you need. Your condition will very likely have it's own specialized support site or foundation where you can find the information you are seeking. To find more go to www.Google.com and enter the name of the disease in the search field.

 

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