PLEASE NOTE: THIS IS NOT THE NATIONAL MARROW DONOR PROGRAM (aka BE THE MATCH) WEBSITE
THIS IS A VOLUNTEER ADVOCACY WEBSITE

To join "Be The Match" by ordering a test kit online please CLICK HERE (For U.S. residents)
To locate a live drive using your Zip Code please CLICK HERE
(For U.S. residents)
To learn where to register in all other countries please CLICK HERE

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Info in Foreign Languages


Read and share donor Info written in Japanese on the Helping Yoko Website
 

Join the Donor Program

If you are here not as a patient or adovacte but as someone who wants to join the marrow donor program to possibly be a match and save a life someday please visit:
Be The Match
where you can order a home test kit online or join in person by locating a live drive using their Zip Code locater.

Be The Match Blog



Key Things to Understand Before Launching Your Donor Drive

1. Learn About the Disease
Click Here for Details

2. Why Ethnicity Matters Click Here for Details

3. Joining the Registry Click Here for Details

4. Locate a Donor Program to Partner With Click Here for Details

5. Common Myths and FAQ's Click Here for Details

6. Learn About the Donation Methods Click Here for Details

7. Learn About Privacy Online Click Here for Details


The Need for Ethnic Marrow Donors is Urgent

Ethnicity Matters: Because marrow matches are made using a chromosone called an HLA match (human leukocyte antigen), every patient's best possibility of finding a match is within their own ethnic group.

The need for more donors, particularly "Mixed Ethnicity" potential donors is urgent. According to MavinFoundation.org people of mixed heritage comprise only 2% of the national database.

Please also spread the word by email, on your blog or by word of mouth so that more people of minority and mixed ethnicities can be made aware of the overall need for minorities as a group to get registered and into the national database.

If you are from one of the following communities, you are urgently needed in the national registry to be a bone marrow donor, stem cell or cord blood donor:

Black and African American
American Indian and Alaska Native
Asian
Native Hawaiian and other Pacific Islander
Hispanic and Latino
Multiple race

CLICK HERE to learn how to join the registry.

National Registry of Potential Marrow / Stem Cell Donors
As of January 3, 2009

Race
Donors
Registered
% of
Total
Number of
Transplants
Asian American Total
532,006
7.2%
531
  - South Asian
139,460
1.9%
25
  - Filipino (Philipino)
43,437
0.6%
55
  - Japanese
32,639
0.4%
112
  - Korean
67,913
0.9%
51
  - Chinese
84,284
1.1%
56
  - Other Southeast Asian
36,400
0.5%
49
  - Vietnamese
16,967
0.2%
11
  - Unspec. Asian/Pacific Islander
95,093
1.3%
172
  - Multiple Asian/Pacific Islander
15,813
0.2%
876
Caucasian
5,408,623
73.0%
14,104
Black or African American
559,972
7.6%
876
Hispanic
386,549
5.2%
766
National Hawaiian/Other Pacific Islander
10,682
0.1%
21
American Indian/Alaska Native
83,739
1.1%
85
Other
30,072
0.4%
209
Multiple Race
219,367
3.0%
-
Declines
43,696
0.7%
265
Unknown
132,606
1.8%
970
TOTAL
7,407,312
100%
17,843

Statistics are:

If you are of Caucasian descent the likelihood of your finding a marrow match is 80%

If you are of minority descent your likelhood of finding a match (all minorities as a group) is 30% or less.

If you are of a smaller ethnic group like Tami is being Japanese, your odds are even lower then that.

To order a Test Kit


To Join the National Marrow Donor Program registry online please click: http://www.marrow.org/JOIN/Join_Now/join_now.html

 

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